I know it has been a long time since my last post, but life has gotten hectic to say the least! Since I am firm believer in taking the good with the bad, here is the good...my oldest just started Lacrosse! Very excited about that! Ryan (3YRS) knows his alphabet, and can put a 25 piece puzzle together in a blink of an eye! My youngest...Brayden (for whom this blog is dedicated) is advancing in every way you would expect for an almost 2 yr old! Very active, trying to claim his independence. Everything you would expect from a 2 yr old male. However ,some things never change. After a short break from severe spells, they are, once again, back with a vengeance! Monday, (3/19/2012) Brayden had 3 spells in a 30min period, all were severe with loss of consciousness. In between spells he was tired, lethargic, whiny, clingy, and exhibited twitching. Not just physical, but you could hear the twitching in his weak cries.
At this point, I am tired of hearing "it's normal, he'll grow out of it", from doctors. At 21 mos old, this breath holding is NOT normal. I feel that the medical profession...or at least the Dr's in my son's practice have become so desensitized by their job to understand the pure worry of a mom who wants to make her son right again.
What I've learned in research these past few months is scary. I started contacting out of state doctors for a 2nd opinion. Google "breath holding spells and the vagus nerve", you will be beside your self. All I want is a definitive answer, and my sons pediatricians think they've given me that based off 2 tests where Brayden had no spells. Yet they treat me with disrespect for worrying when they told me not to. As I have said before...I am not a doctor...but I know MY child better than anyone. What he is going through is INVOLUNTARY, UNCONTROLLABLE, SCARY,and NOT NORMAL!
Will keep you updated!
