Things are moving along in growing Involuntary Breath Holding Spells Awareness! On Monday March 17th 2014 I submitted the paperwork to my State Rep's office to register as an official nonprofit organization!! This is very exciting for me! Making this official is a big step as we move forward in gaining national awareness! According to the paperwork it takes 10-14 days for this to be completed, so I am counting down!!
Our first fundraiser was a huge success! The awareness t-shirts look awesome, and as you can see from the picture above, they look great on our kids! Wearing this shirt is a great way to show your support and spread awareness of this involuntary medical condition. If you were not able to purchase a shirt during this fundraiser, I will be running the booster again in the summer!
I hope those who found this blog from the beginning are still following us today. Our format has changed a bit, as Brayden's condition has improved, and so the focus has turned to more of an awareness forum. However, I am always available to talk to anyone looking for support while they are living with this condition. In fact, I added a "contact" form to the right side of the blog that I hope you use if you need support. If you are new to this blog, feel free to read through from the beginning, as I am sure you will find a little bit you in my blog!!
Thank you for supporting and following along on our journey with Involuntary BHS! If you would like to get involved in efforts to spread awareness please use the contact form on the right.
