Our week free of medicines...
Brayden was taken off all meds a week ago. He has since had no interventions for his BHS or seizures. During the past week he has suffered 6+ night episodes, 4 simple BHS, 9 severe BHS and 4 seizures. The only changes in his level of activity come in the moments surrounding the severe BHS and the seizures. He tends to be lethargic for a period of time after severe BHS and goes into a postictal phase of unwakeable sleep after seizures, which lasts for 3-4 hours. So things are gradually getting worse, back to where we were when we started this journey. Which I expected would happen. Other than that he is the same great kid he always was without meds.
I have the oils needed to start the holistic method of managing these episodes, however, I'm not sure if I want to wait until we come back from vacation on Sunday or bring them with us and start there. Hmmmm...
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