Involuntary Breath Holding Awareness News!

On Monday September 23, 2013, in a unanimous decision, the House of Representatives passed our legislation for Involuntary Breath Holding Awareness Day!  This legislation which recognizes July 14 as a day to bring awareness to this poorly named condition is a big step for parents who care for children with this condition and suffer the ignorance of medical professionals and the general public.  However, it is only a small step in a very big dream I have that one day our children will not be labeled as defiant, and us as parents will not be looked at as crazy people for worrying.  Our next step in this journey is to contact congressmen and gain their support and bring this legislature to a federal level.  I hope that with the help of my fellow parents of "breath holders", we can achieve this goal and so much more!!

If you or some one you know, has a child with BHS and are looking for support and resources, please check out and pass on the following links!

www.BHSAwareness.com  On Facebook? Join the group Parents of Breath Holders for support from an amazing group of parents!

Thank you for reading!