Lowering the dose: Week 1 (1.5ml)

So beginning on April 3, 2013 I lowered Brayden's dose from 2ml to 1.5ml, and kept him on the B6, with the intent to take him off the medicine.  By day 2 two I saw a huge improvement in his personality.  He was no longer waking up angry and being aggressive with myself and his older brother.  So much for the doctors thinking it was the terrible two's being mistaken for Keppra Rage.  As the week went on he was more with it, and his appetite came back.  It's been so nice seeing my little boy emerge from this again!

As suspected, we are seeing more seizures, and BHS and the return of his night episodes.  He's had 3 severe BHS which resulted in RAS (reflex anoxic seizures), and 2 seizures (w/no preceeding BHS).  He had 4 night episodes which start with him letting out a cry then tossing, turning and some thrashing in bed.  This happened a lot prior to the medicine and twice during the 24hr VEEG.  During the VEEG, when this would happen, his heart rate would jump from about 84BPM to about 147BPM (the exact numbers varied, however, the jump was always as drastic), and his brain activity was funky. 

Although it is so nice seeing the end of the horrible side effects, I can't hide the fact that it hurts to see the seizures and BHS return on daily/nightly basis.  Especially knowing it will get worse before it gets better. The good news is, I put the order in for the Frankincense and will be ordering the other oils (serenity, balance, and lavender) as well.  Today we lower his dose again, so I feel the knot forming in my stomach already.  Looking forward to being able to start the oils!