Wednesday, April 24, 2013

Lowering the Dose: Week 3 .5ml

4/24/2013-Brayden's dose was lowered for the last time on 4/17/2013 to .5ml and we took him off the B6. Brayden has gone back to being a restless sleeper, however he is still eating very well, is active, and your typical 2 year old.  This week he experienced 8 night episodes, 2 simple BHS and 2 severe BHS.  Not a bad week all in all! From here we do no treatment for a week and then begin using the essential oils.  The part that I am most excited about is knowing that he won't have to suffer the nasty side effects that he did on the Keppra.  I pray that it works for us, if it doesn't I will be back at square one, feeling more lost than ever :/

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