The Best is Yet to Come!

Or at least, that's what it feels like!  I'm starting to wonder if this blog will go on much longer!  This blog began with the diagnosis of Breath Holding Spells for my son.  It has been a wild and crazy journey, with ups and downs, hopes and heartache.  I started this blog because when I began my research of breath holding spells, I wasn't finding what I was looking for.  I saw clinical explanations (or as I like to call them, clinical opinions) of what breath holding spells were.  I could see from watching my son go through it that it was much more than what their opinions suggested.  What I couldn't find, was a parent's account of this condition.  Something to relate to.  I wanted to put something out there that detailed the struggle and the reality of this condition, that proved that this is not my son being "defiant", as doctors will tell you.  

And so, with us celebrating our 4th week free of seizures, and severe breath holding spells (thanks to doTerra Essential Oils*), I would like to announce, that this blog will go on!  I will no longer report weekly on Brayden's progress.  Progress updates will be given on a bi-monthly/monthly basis, along with appointment updates.  This blog, however, will go on to continue to bring awareness to the condition and how families, live with, and handle it.  I will report on the progress of our awareness campaign, to spread awarenss, and find answers to this complex and confusing condition.  I would like this blog to go on to serve as a resource for other parents who are beginning their journey or continuing their journey with breath holding spells.

As confusing as this condition is, so our my emotions right now.  This blog not only served as an informational resource, but as place for me to sound off, vent, and let go of emotions.  Breath Holding Spells became such a big part of our life, an every day, several times a day occurrence, that it seems strangely vacant, quiet without them.  This piece of us, that became who we are and how we live, is no longer with us. Not that I would ever want to see it again, but it is weird without it.  Going through your day expecting something that was once a normal part of your day, and getting through it without it, is a strange new world for us.  I don't know if anyone else has ever felt this way about something like this.  It's hard to actually put into words without it sounding like I miss this ugly monster that took control of my son, made him suffer, and caused us heartache.  But I can tell you one thing, it is nice to not have to worry, to be able to breathe again!

As Frank Sinatra once sang "The best is yet to come, and won't it be fine".

As always, thank you for reading, and for the support! Please check out these links to help spread awareness!

http://bhsawareness.webs.com (Breath Holding Spell Awareness website, I launched 5/31/13)

http://wh.gov/JnDU (We are petitioning the White House to bring awareness to BHS! Please take a moment to sign our petition! Thank you!)

* http://mydoterra.com/lisacramer (Follow this link to order essential oils to relieve the symptoms of BHS for your child!)